{"id":51,"date":"2015-08-27T11:33:28","date_gmt":"2015-08-27T11:33:28","guid":{"rendered":"http:\/\/deskiziarecords.com\/CIFASD\/?page_id=51"},"modified":"2015-09-25T15:54:56","modified_gmt":"2015-09-25T15:54:56","slug":"informatics-core-resources","status":"publish","type":"page","link":"https:\/\/cifasd.org\/resources\/informatics-core-resources\/","title":{"rendered":"Informatics Core Resources Available to the FASD Research Community"},"content":{"rendered":"[vc_row][vc_column width=”1\/1″][vc_column_text disable_pattern=”true” align=”left” margin_bottom=”0″]\n

The Informatics Core, in collaboration with the rest of CIFASD, has developed a series of data dictionaries and input tools that can be used by any researcher interested in collecting similar data. They enable the various projects within CIFASD to share data and we encourage other projects interested in sharing data with CIFASD to take advantage of these standards and tools.<\/p>\n

These data dictionaries and Input Tools are made freely available at:
\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/downloads.html<\/a><\/p>\n

If you have any questions or would like more information, please contact us at: cifasdic@iu.edu<\/a><\/p>\n

Specific Tools include \u2026<\/p>\n

Data dictionaries<\/strong> describe the controlled vocabulary of the consortium, providing
\nvariable names, labels, allowable values, and dependencies between variables.<\/p>\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n
Data
\nDictionary<\/th>\n<\/tr>\n
Dysmorphology<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/dysmo\/data_sharing\/Dysmo_DataDictionary.xls<\/a><\/td>\n<\/tr>\n
Alcohol & Control<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/EEAC\/data_sharing\/EEAC_DataDictionary.xlsx<\/a><\/td>\n<\/tr>\n
Neurobehavior I<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/neuro\/data_sharing\/Neuro_DataDictionary.xls<\/a><\/td>\n<\/tr>\n
Neurobehavior II<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/neuroII\/data_sharing\/NeuroII_DataDictionary.xls<\/a><\/td>\n<\/tr>\n
Neurobehavior III<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/neuroIII\/data_sharing\/NeuroIII_DataDictionary.xlsx<\/a><\/td>\n<\/tr>\n
Infant Neurobehavior<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/infneuro\/data_sharing\/InfantNeuro_DataDictionary.xls<\/a><\/td>\n<\/tr>\n
Preschool Neurobehavior<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/infneuro\/data_sharing\/PreschoolNeuro_DataDictionary.xlsx<\/a><\/td>\n<\/tr>\n
Demographics<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/neuroIII\/data_sharing\/Demographics_DataDictionary.xls<\/a><\/td>\n<\/tr>\n
Ultrasound<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/ultrasound\/data_sharing\/Ultrasound_DataDictionary.xls<\/a><\/td>\n<\/tr>\n
Screener<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/screener\/data_sharing\/Screener_DataDictionary.xls<\/a><\/td>\n<\/tr>\n
Follow-Up Outcome<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/followup\/data_sharing\/Outcome_DataDictionary.xls<\/a><\/td>\n<\/tr>\n
Eating Habits<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/eathabits\/data_sharing\/EatingHabit_DataDictionary.xls<\/a><\/td>\n<\/tr>\n
3D Facial Imaging<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/3DFace\/data_sharing\/3DFI_DataDictionary.xls<\/a><\/td>\n<\/tr>\n
Brain Imaging<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/brain\/data_sharing\/BrainImaging_DataDictionary.xls<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

The Input Tools<\/strong> are Microsoft Access databases that provide electronic data entry forms for collecting data that conform to the data dictionaries.<\/p>\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n
Input Tools<\/th>\n<\/tr>\n
Dysmorphology<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/dysmo\/data_sharing\/Dysmorphology.zip<\/a><\/td>\n<\/tr>\n
Alcohol & Control<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/EEAC\/data_sharing\/EEAC.zip<\/a><\/td>\n<\/tr>\n
Neurobehavior I<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/neuro\/data_sharing\/Neurobehavior.zip<\/a><\/td>\n<\/tr>\n
Neurobehavior II<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/neuroII\/data_sharing\/NeurobehaviorII.zip<\/a><\/td>\n<\/tr>\n
Neurobehavior III<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/neuroIII\/data_sharing\/NeurobehaviorIII.zip<\/a><\/td>\n<\/tr>\n
Infant Neurobehavior<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/infneuro\/data_sharing\/InfantNeuro.zip<\/a><\/td>\n<\/tr>\n
Preschool Neurobehavior<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/infneuro\/data_sharing\/PreschoolNeuro.zip<\/a><\/td>\n<\/tr>\n
Demographics<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/neuroIII\/data_sharing\/Demographics.zip<\/a><\/td>\n<\/tr>\n
Ultrasound<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/ultrasound\/data_sharing\/Ultrasound.zip<\/a><\/td>\n<\/tr>\n
Screener<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/screener\/data_sharing\/Screener.zip<\/a><\/td>\n<\/tr>\n
Follow-Up Outcome<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/followup\/data_sharing\/Follow-Up-Outcome.zip<\/a><\/td>\n<\/tr>\n
Eating Habits<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/eathabits\/data_sharing\/EatingHabit.zip<\/a><\/td>\n<\/tr>\n
3D Facial Imaging<\/strong><\/td>\nN\/A<\/td>\n<\/tr>\n
Brain Imaging<\/strong><\/td>\nN\/A<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

The data dictionaries and Input Tools are organized around a series of types of data:<\/p>\n

Dysmorphology<\/strong>: Physical exam data plus a small, select set of variables for prenatal exposure and recruitment group.<\/p>\n\n\n\n\n\n
Dysmorphology<\/th>\n<\/tr>\n
Data Dictionary<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/dysmo\/data_sharing\/Dysmo_DataDictionary.xls<\/a><\/td>\n<\/tr>\n
Input Tool<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/dysmo\/data_sharing\/Dysmorphology.zip<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

Neurobehavior<\/strong>: Neuropsychological results for a battery of tests aimed at assessing academic achievement, behavioral and neurocognitive abilities. Neurobehavior I represents the eighteen exams used during CI-FASD\u2019s first funding period. Neurobehavior II represents the fourteen exams, some of them overlapping with Neurobehavior I, used in CI-FASD\u2019s second funding period, including multiple time tested information.<\/p>\n\n\n\n\n\n\n\n\n\n\n\n
Neurobehavior I<\/th>\n<\/tr>\n
Data Dictionary<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/neuro\/data_sharing\/Neuro_DataDictionary.xls<\/a><\/td>\n<\/tr>\n
Input Tool<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/neuro\/data_sharing\/Neurobehavior.zip<\/a><\/td>\n<\/tr>\n
Neurobehavior II<\/th>\n<\/tr>\n
Data Dictionary<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/neuroII\/data_sharing\/NeuroII_DataDictionary.xls<\/a><\/td>\n<\/tr>\n
Input Tool<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/neuroII\/data_sharing\/NeurobehaviorII.zip<\/a><\/td>\n<\/tr>\n
Neurobehavior III<\/th>\n<\/tr>\n
Data Dictionary<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/neuroIII\/data_sharing\/NeuroIII_DataDictionary.xlsx<\/a><\/td>\n<\/tr>\n
Input Tool<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/neuroIII\/data_sharing\/NeurobehaviorIII.zip<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

Demographics<\/strong>: A more extensive set of demographic information then found in other datasets, including alcohol exposure and medication usage variables.<\/p>\n\n\n\n\n\n
Demographics<\/th>\n<\/tr>\n
Data Dictionary<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/neuroIII\/data_sharing\/Demographics_DataDictionary.xls<\/a><\/td>\n<\/tr>\n
Input Tool<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/neuroIII\/data_sharing\/Demographics.zip<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

Infant Neurobehavior<\/strong>: Bayley variables, heart rate monitoring, and maternal questionnaire
\nvariables.<\/p>\n\n\n\n\n\n
Infant Neurobehavior<\/th>\n<\/tr>\n
Data Dictionary<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/infneuro\/data_sharing\/InfantNeuro_DataDictionary.xls<\/a><\/td>\n<\/tr>\n
Input Tool<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/infneuro\/data_sharing\/InfantNeuro.zip<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

Preschool Neurobehavior<\/strong>: Cardiac orienting response data, identical to that collected in Phase II except for the specific visual and auditory stimuli. A standard neurobehavioral testing battery (comparable to the 5-7 year old assessment) at the 3.5-4.5 years of age visit<\/p>\n\n\n\n\n\n
Preschool Neurobehavior<\/th>\n<\/tr>\n
Data Dictionary<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/infneuro\/data_sharing\/PreschoolNeuro_DataDictionary.xlsx<\/a><\/td>\n<\/tr>\n
Input Tool<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/infneuro\/data_sharing\/PreschoolNeuro.zip<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

3D Facial Imaging<\/strong>: Measurements of facial features and coordinates taken from 3D facial imaging. No input tool is provided as data are entirely computer-generated.<\/p>\n\n\n\n\n\n
3D Facial Imaging<\/th>\n<\/tr>\n
Data Dictionary<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/3DFace\/data_sharing\/3DFI_DataDictionary.xls<\/a><\/td>\n<\/tr>\n
Input Tool<\/strong><\/td>\nN\/A<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

Brain Imaging<\/strong>: Cortical and subcortical measurements of brain structures. No input tool is provided as data are entirely computer-generated.<\/p>\n\n\n\n\n\n
Brain Imaging<\/th>\n<\/tr>\n
Data Dictionary<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/brain\/data_sharing\/BrainImaging_DataDictionary.xls<\/a><\/td>\n<\/tr>\n
Input Tool<\/strong><\/td>\nN\/A<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

Ultrasound<\/strong>: Demographics, anatomic survey, biophysical profile (BPP), and startle response variables.<\/p>\n\n\n\n\n\n
Ultrasound<\/th>\n<\/tr>\n
Data Dictionary<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/ultrasound\/data_sharing\/Ultrasound_DataDictionary.xls<\/a><\/td>\n<\/tr>\n
Input Tool<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/ultrasound\/data_sharing\/Ultrasound.zip<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

Screener<\/strong>: Demographics, pregnancy, and substance abuse variables for a prospective study.<\/p>\n\n\n\n\n\n
Screener<\/th>\n<\/tr>\n
Data Dictionary<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/screener\/data_sharing\/Screener_DataDictionary.xls<\/a><\/td>\n<\/tr>\n
Input Tool<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/screener\/data_sharing\/Screener.zip<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

Alcohol & Control<\/strong>: also known as First Interview Maternal Questionnaire includes demographics, pregnancy, paternal\/maternal alcohol usage, maternal knowledge, relationships, substance abuse, maternal drug use, and biomarker variables.<\/p>\n\n\n\n\n\n
Alcohol & Control<\/th>\n<\/tr>\n
Data Dictionary<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/EEAC\/data_sharing\/EEAC_DataDictionary.xlsx<\/a><\/td>\n<\/tr>\n
Input Tool<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/EEAC\/data_sharing\/EEAC.zip<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

Follow-Up\/Outcome<\/strong>: also known as Second Interview Maternal Questionnaire includes outcome of pregnancy, infant information, and recent maternal alcohol use variables.<\/p>\n\n\n\n\n\n
Follow-Up Outcome<\/th>\n<\/tr>\n
Data Dictionary<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/followup\/data_sharing\/Outcome_DataDictionary.xls<\/a><\/td>\n<\/tr>\n
Input Tool<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/followup\/data_sharing\/Follow-Up-Outcome.zip<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

Eating Habits<\/strong>: growth measures, measures of sleep disturbances, illness, and eating behaviors collected at 2 years of age and again at 3.5-4.5 years of age.<\/p>\n\n\n\n\n\n
Eating Habits<\/th>\n<\/tr>\n
Data Dictionary<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/eathabits\/data_sharing\/EatingHabit_DataDictionary.xls<\/a><\/td>\n<\/tr>\n
Input Tool<\/strong><\/td>\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/eathabits\/data_sharing\/EatingHabit.zip<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

These data dictionaries and Input Tools are made freely available at:
\nhttps:\/\/cifasd.uits.iu.edu\/downloads\/downloads.html<\/a><\/p>\n

If you have any questions or would like more information, please contact us at: cifasdic@iu.edu<\/a><\/p>\n[\/vc_column_text][\/vc_column][\/vc_row]\n","protected":false},"excerpt":{"rendered":"

[vc_row][vc_column width=”1\/1″][vc_column_text disable_pattern=”true” align=”left” margin_bottom=”0″] The Informatics Core, in collaboration with the rest of CIFASD, has developed a series of data dictionaries and input tools that can be used by any researcher interested in collecting similar data. They enable the various projects within CIFASD to share data and we encourage other projects interested in sharing […]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":49,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_mi_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"_links":{"self":[{"href":"https:\/\/cifasd.org\/wp-json\/wp\/v2\/pages\/51"}],"collection":[{"href":"https:\/\/cifasd.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/cifasd.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/cifasd.org\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/cifasd.org\/wp-json\/wp\/v2\/comments?post=51"}],"version-history":[{"count":1,"href":"https:\/\/cifasd.org\/wp-json\/wp\/v2\/pages\/51\/revisions"}],"predecessor-version":[{"id":142,"href":"https:\/\/cifasd.org\/wp-json\/wp\/v2\/pages\/51\/revisions\/142"}],"up":[{"embeddable":true,"href":"https:\/\/cifasd.org\/wp-json\/wp\/v2\/pages\/49"}],"wp:attachment":[{"href":"https:\/\/cifasd.org\/wp-json\/wp\/v2\/media?parent=51"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}